Related Content
Videos & Presentations
Virtual Symposium: Anti-Racist Community
Syllabi Archive
Submit a Syllabus for the Archive
External Websites
Renewing Democracy Teaching Collection
Books
Community Colleges for Democracy: Aligni
Knowledge Hubs
Community-Engaged Learning and Teaching
Knowledge Hubs
Electoral Engagement in Community Colleg
Civic Action Plans
University of Mary Washington Civic Acti
Books
Creating Space for Democracy: A Primer o
Books
The Craft of Community-Engaged Teaching
Books & Publications
National Issues Forums Issue Guide: A Ho
Get updates on what's new in the Campus Compact Network
Developing a family-based HIV prevention intervention in rural Kenya: Challenges in conducting community-based participatory research
This paper discusses the ethical challenges faced by a CBPR study in rural Kenya to develop and pilot a family-based HIV prevention and mental health promotion intervention. The ethical challenges that emerged related to: negotiating power imbalances between academic partners and the community advisory committee; the community advisory committee members’ shifting roles as part of the committee and the wider community; and anticipated challenges in decision making about sustainability. Puffer, E. S., Pian, J., Sikkema, K. J., Ogwang-Odhiambo, R. A., & Broverman, S. A. (2013). Developing a family-based HIV prevention intervention in rural Kenya: Challenges in conducting community-based participatory research….
Balancing safety and action: Ethical protocols for photovoice research with women who have experienced violence
This paper describes and reflects on an ethics and safety protocol to conduct Photovoice research with women who have experienced intimate partner violence. The Protocol was developed as a way to navigate the tensions among three imperative aspects of the study: (a) maintaining the confidentiality and safety of participants, (b) using the data for action and knowledge exchange activities, and (c) working to destabilize traditional power relations between researchers and participants. The Protocol provides an example of how ethical and safety tensions associated with conducting action- oriented methods with members of marginalized populations can be addressed.Ponic, P. & Jategaonkar, N….
Community engagement in research: Frameworks for education and peer review
This paper describes the National Institutes of Health Director’s Council of Public Representatives’ (DCPR) community engagement framework, which was designed to educate researchers to create and sustain authentic community – academic partnerships that will increase accountability and equality between the partners. The framework includes values, strategies to operationalize each value, and potential outcomes of their use in community engaged research, as well as a peer review criteria for evaluating research that engages communities. Ahmed, S. M &. Palermo, A. S. (2010). Community engagement in research: Frameworks for education and peer review. American Journal of Public Health, 100(8), 1380-1387.
Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities
This article examines ethical issues that emerged during a CBPR study in Toronto, Canada, exploring sexual health attitudes and practices among lesbian, gay, bisexual, trans, queer, and questioning young people labeled with intellectual disabilities. The authors then explain how incorporating critical disability perspectives and a heightened awareness of professional role conflict into CBPR practices has the potential to foster development of more inclusive and accessible research environments. Marshall, Z., Nixon, S., Nepveux, D., Vo, T., Wilson, C., Flicker, S.,…& Proudfoot, D. (2012). Navigating risks and professional roles: Research with lesbian, gay, bisexual, trans, and queer young people with intellectual disabilities….
Ethical issues in collaborative action research
Researchers conducting collaborative, participatory action research often face dilemmas in attempting to work within conventional university-based ethical approval procedures. In response to these challenges, the authors derived a set of eight ethical principles that reflect both the conceptual assumptions on which collaborative, participatory action research is based, and the nature of the values, relationships, and decision-making that it practically involves. The authors apply these principles in a discussion of a number of collaborative action research case studies. The article concludes with recommendations for changes to the university ethical review process. Locke, T., Alcorn, N., & O’Neill, J. (2013). Ethical issues…
Peer research assistantships and the ethics of reciprocity in community-based research
A major component of community-based research in the field of HIV is the Meaningful Involvement of People Living with HIV/AIDS (MIPA) through hiring, training and supporting peer research assistants (PRAs). This article discusses some of the ethical tensions related to the PRA/researcher relationship, the relationship of the PRA to the research itself, and suggestions for how to move forward in addressing these tensions. Greene, S. (2013). Peer research assistantships and the ethics of reciprocity in community-based research. Journal of Empirical Research on Human Research Ethics, 8(2), 141-152. Full Text.
Ethical challenges and opportunities for nurses in HIV and AIDS community-based participatory research in Jamaica
This paper outlines some ethical challenges and opportunities experienced during a CBPR project in Jamaica that aimed to strengthen nurses’ engagement in HIV and AIDS policy. The project involved diverse HIV and AIDS stakeholder groups: frontline nurses, nurse managers, researchers, health care decision makers, and other community members, including people living with HIV or AIDS. The ethical challenges and opportunities faced by this diverse partnership are outlined using a relational public health ethics framework. Davison, C. M., Kahwa, E., Edwards, N., Atkinson, U., Hepburn- Brown, C., Aiken, J., P.,…MacFarlane, D. (2013). Ethical challenges and opportunities for nurses in HIV and…
From knowledge translation to engaged scholarship
To date, most efforts to translate research into health care practice have had only modest success. In response to this, the authors summarize what is known about moving knowledge into action, and the implications for rehabilitation medicine. There is increasing evidence that simple knowledge transfer alone is rarely effective. Instead, if research is to be used, it must answer important questions of concern to knowledge users, and it must be integrated with contextual evidence in order to become actionable in a specific setting. This type of research requires genuine participation of knowledge users (i.e. managers, practitioners, and patients) starting at…
Managing ethical dilemmas in community-based participatory research with vulnerable populations
In this article, researchers describe ethical dilemmas encountered by their research team during a CBPR study with undocumented immigrants in Toronto, Canada. They address the problems the research team faced, the processes by which they sought to understand the problems, how solutions were found, and how the ethical dilemmas were resolved. The lessons outlined in this article may assist others in overcoming ethical dilemmas encountered while doing research with vulnerable communities. Campbell-Page, R. M., & Shaw-Ridley, M. (2013). Managing ethical dilemmas in community-based participatory research with vulnerable populations. Health Promotion Practice, 14(4), 485-490. Full Text.
Research ethics education for community-engaged research: A review and research agenda
The authors—a group of representatives of CTSA-funded institutions and others who share expertise in research ethics and community-engaged research (CEnR)—have identified gaps in the literature regarding (1) ethical issues unique to CEnR; (2) the particular instructional needs of academic investigators, community research partners, and IRB members; and (3) best practices for teaching research ethics. This paper presents what we know, and what we still need to learn, in order to develop quality research ethics educational materials tailed to the full range of stakeholder groups in CEnR. Anderson, E. E., Solomon, S., Heitman, E., DuBois, J., Fisher, C. B., Kost, R….
Rethinking Scholarship and Engagement
This article provides a brief history of higher education in this country, identifies some of the new shifts affecting higher education today, and posits two ways needed to respond to these shifts: a broader more inclusive definition of scholarship and an effective challenge to the dominant epistemology shaping our understanding of both scholarly work and engagement. Rice, R.E. (2003). Rethinking scholarship and engagement: The struggle for new meanings. Campus Compact Reader, pp. 1-9. Full Text.
Participant protections and research integrity: A pilot focus group study
This pilot focus group study explores the views of academic partners and community partners regarding challenges to the protection of research participants and research integrity in community-engaged research (CEnR). The findings presented have implications for the development of research ethics training materials for academic-community research partnerships and IRBs; best practices for CEnR; and future research on ethical issues in CEnR. Anderson, E. E. (2013). Participant protections and research integrity: A pilot focus group study. Journal of Empirical Research on Human Research Ethics, 8(1), 20-31. Full Text.
The power of collaborative solutions: Six principles and effective tools for building healthy communities
In his book, author Tom Wolf asserts that in order to solve complex problems and build healthy communities we must form partnerships and collaborations. Wolf describes why the traditional community problem-solving methods are failing and offers six key principles to build healthy communities through collaboration: encourage true collaboration as the form of exchange, engage the full diversity of the community, employ an ecological approach that builds on community strengths, take action by addressing issues of social change and power on the basis or a common vision, and engage spirituality as the compass for social change. Wolf, T. (2010). The power…
Engaged Scholarship stepping out
In this article Andrew Van de Ven presents an interview with hinself in which he answers a series of questions on engaged scholarship and encourages people in all “realms”, not only researchers, to “step out” and engage others in order develop a deeper understanding of their field or study. Van de Ven describes engaged scholarship as a process in which academics participate with other scholars, stakeholders, and practitioners to collaborate on research. Although he comments on the existing gap between theory and practice of social research, he offers a solution to this gap and predicts there will be a “wave…
Decolonizing methodologies: Research and indigenous peoples
In this research methodology book, Smith explores the intersections of imperialism and research—to the colonized, the term “research” is conflated with colonialism, and academic research steeped in imperialism remains a painful reality. Smith then discusses concepts such as “discovery” and “claiming”, and argues that the decolonization of research methods will help to reclaim control over indigenous ways of knowing and being. Finally, the author proposes an Indigenous Research Agenda and provides examples of such research. Smith, L. T. (2012). Decolonizing methodologies: Research and indigenous peoples. New York, NY: Zed Books.
Collaboration between universities: An effective way of sustaining community-university partnerships?
In the era of the global economic recession, many higher education institutions have faced budget cuts. In this piece, the authors argue that community-university partnerships should be highly valued due to the ability of such partnerships to improve the quality of teaching and research. The South East Coastal Communities program (SECC) of southern England is presented in this paper to demonstrate ways in which partnerships can lead to new research opportunities, new developments in curriculum, and build the knowledge and skills of students in an context outside of the classroom. Pratt, J., Matthews, S., Nairne, B., Hoult, E. & Ashenden,…
Aligning the goals of community-engaged research: Why and how academic health centers can successfully engage with communities to improve health
The aim of this article is to assist academic health centers (AHC) in community engagement (CE) and community-engaged research (CEnR) using five steps: defining community and identifying partners, learning the etiquette of CE, building a sustainable network of CEnR researchers, recognizing that CEnR will require the development of new methodologies, and improving translation and dissemination plans. This paper asserts that national health disparities will persist without CEnR, and that barriers toward implementation of CEnR can be overcome through leadership and commitment of top decision makers within institutions. Michener, L., Cook, L., Ahmed, S.M., Yonas, M.A., Coyne-Beasley, T., & Aquilar-Gaxiola, S….
Development of a national survey to assess student learning outcomes of community-based research
This article describes the creation of a conceptually valid and statistically reliable CBR Student Learning Outcomes Survey, first analyzing the perceived benefits of CBR experienced by 70 undergraduates and faculty at six colleges and universities and later piloted to students from 15 colleges and universities (N=166). Five CBR “outcome con-structs” were measured: academic skills, educational experience, civic engagement, professional skills, and personal growth. This survey can be used as a tool for universities to evaluate CBR courses. Lichtenstein, G., Thorme, T., Cutforth, N., & Tombari, M.L. (2011). Development of a national survey to assess student learning outcomes of community-based research….
A systematic review of community-based participatory research to enhance clinical trials in racial and ethnic minority groups
This systematic literature review examines the effectiveness of current CBPR clinical trials involving racial and ethnic minorities. The review finds that CBPR is effective in increasing participation of racial and ethnic minority subjects in research. Additionally, it finds that CBPR may be a powerful tool to improve both the measurement of health disparities and in testing the generalizability of effective interventions among populations traditionally under-represented in clinical trials. De Las Nueces, D., Hacker, K., DiGirolamo, A., & Hicks, L.S. (2012). A systematic review of community-based participatory research to enhance clinical trials in racial and ethnic minority groups. Health Services Research, 47(3),…
Relationships hold the key to trustworthy and productive translational science: Recommendations for expanding community engagement in biomedical research
Good relationships between research institutions and communities are an essential, but often neglected, part of the infrastructure of translational science. In this article, the authors report the results of a workshop they convened to learn how such relationships are best created and sustained. They highlight common barriers and challenges that hinder relationships, and provide recommendations that research institutions and teams can use to expand and strengthen their relationships with community members. Yarborough, M., Edwards, K., Espinoza, P., Geller, G., Sarwal, A., Sharp, R. R., & Spicer, P. Relationships hold the key to trustworthy and productive translational science: Recommendations for expanding…